Resources for Catastrophic Injuries

People who have sustained catastrophic injuries (and their families) are often in need of precise, specialized information regarding the injury suffered, the latest care and support options, research into new treatment options, and the psychological and emotional support that can come from connecting with other people who have suffered similar losses.  For some of the categories of catastrophic injuries, the following resources may be helpful:

 

resources for catastrophic injuriesBurn Injury Resources

The Phoenix Society for Burn Survivors is an online collection of information and resources for victims of serious burn injuries and their families. In addition to providing information, the society organizes an annual meeting for burn survivors, medical professionals, and firefighters.

The Model Systems Knowledge Translation Center provides information for survivors of several types of devastating injuries, including burn injuries. Its resources address both immediate needs, such as wound care, and long-term needs, including emotional and social issues, rehabilitation, and employment.

The American Burn Association is primarily aimed at medical professionals; however, it also includes useful information for coping with burn injuries and for burn prevention.

 

Amputation Resources

The Amputee Coalition is a nationwide dedicated to preventing, treating, and helping people live with limb loss.  It includes a resource center with a variety of printed materials and free resource specialists available by telephone.

ActiveAmp provides information and contacts for “adaptive sports” — activities designed “to accommodate “putees.

resources for catastrophic injuriesQuadriplegia and Paraplegia Resources

The Model Systems Knowledge Translation Center also covers information for spinal cord injury victims. It provides information for those living with spinal cord injuries, with documents and videos covering topics from the latest research studies to techniques for coping with activities of daily living.

The United Spinal Association has been in existence for nearly 70 years.  It is a large, national non-profit that provides information and other resources to both military and civilian victims of spinal cord injury.

The Christopher Reeve Foundation—named after the actor who suffered a spinal cord injury in a riding accident—provides information on current research studies, grants to non-profits that provide services to paralysis victims, and a wide variety of print and video resources.

 

Blindness Resources

The National Federation of the Blind was founded in 1940 with the goal of fully integrating the blind into society. It offers resources to help the newly blind adjust to their condition, particularly by meeting with people experiencing blindness to learn how they accommodate the condition in their daily lives and work.

The American Foundation for the Blind was founded in 1921 to help people with vision loss reach their full capabilities.  Their most famous member was Helen Keller.  They provide support and knowledge to blind people and their families and support the development of “accessibility” tools and products to help people work.

The Society for “the Blind is a “non-profit organization in Northern California that offers support and resources for people who are blind or have limited vision. It offers unique programs for youth and the elderly and a store that sells numerous assistive products for the blind and visually impaired.

 

Reflex Sympathetic Dystrophy (RSD) Resources

The Reflex Sympathetic Dystrophy Syndrome Association is a national organization that provides patient resources and supports research into this devastating condition.  Their resources page provides much information on this condition, also known as Complex Regional Pain Syndrome (CRPS).

The American Chronic Pain Association offers information on medications, treatments, and pain management techniques for the severe pain that is the most challenging symptom of RSD/CRPS.

 

resources for catastrophic injuriesTraumatic Brain Injury (TBI) Resources

The Brain Injury Association of America is the oldest nationwide organization devoted to this condition.  In addition to supporting research and prevention efforts, the association has a great deal of information available to TBI victims through the website and local affiliates.

In addition to the burn injury and spinal cord injury resources mentioned above, the Model Systems Knowledge Translation Center is also a storehouse for valuable information about traumatic brain injuries.

BrainLine is an online multimedia project offering information, support, and an opportunity to connect with others who have sustained traumatic brain injuries.

 

I’m Ed Smith, a Sacramento catastrophic injury attorney with the primary accident information on AutoAccident.com.

If you or a loved one has suffered a catastrophic injury, call me now at 916.921.6400.

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